status: Recognised & Endorsed
Chair (s): Shanmugasundaram Venkataraman, Celia Alvarez-Romero, Kristan Kang, Anupama Gururaj
Group Email: [group_email]
Secretariat Liaison: [field_secretariat_liaison]
Adoption and application of the FAIR principles to research data has grown significantly in the few years that they have existed. They have been embraced in many quarters and have paved the way to creating a level playing field for data reuse. Nevertheless, they also pose challenges in some areas of research where reuse may not be an automatic right due to issues of confidentiality, privacy, commercial interests and sensitivities in general.
One sector of research where this is particularly evident is health research, and this proposed working group aims to address global disparities in uptake of the FAIR principles in health research and within health research performing organisations (HRPOs). The work will build upon existing and ongoing work being conducted at the European level (please see below the attached document "D2.3 Guidelines for implementing FAIR open data policy in health research"), and which has in itself identified differences in policies within that region. The aim will be to expand on this work to create a global analysis of policies and to subsequently draw on commonalities to propose a set of guidelines (RDA outputs or recommendations) that can be utilised by HRPOs in their local contexts to address FAIRification of their research data.
Please find additional information at these pages from previous RDA engagements:
https://www.rd-alliance.org/bof-assessing-fair-data-policy-implementatio...
https://www.rd-alliance.org/guidelines-health-research-performing-organi...
https://www.rd-alliance.org/wg-guidelines-implementing-fair-open-data-po...
Posts
Upcoming webinar (8/11, 12:00 UTC): WorldFAIR Output Webinar Series: Guidelines and Recommendations from Population Health and Urban Health
Dear Group members, **apologies for cross-posting** The following event may be of interest to you:0 | Add new comment
August 30th RDA Community Cross-Fertilisation Workshop on Disciplinary Data
by Beth Knazook
An upcoming RDA community cross-fertilisation workshop focused on disciplinary research needs is happening at 10:00 UTC on August 30th. Participating groups include Linguistics, Biodiversity, and Life Sciences, with a roundtable discussion from RDA/EOSC Future Domain Ambassadors in those research fields as well as Materials Sciences and Engineering, Social Sciences, and Ethics and Law. We're looking forward to a lively discussion!0 | Add new comment
Invitation to participate in 'A Decade of Data: 10 Years of the RDA' events and activities
by Connie Clare
Good day, The RDA Secretariat would like to invite the Raising FAIRness in health data and health research performing organisations (HRPOs) WG to participate in ‘A Decade of Data’: Celebrating 10 Years of the Research Data Alliance’. 10 months to celebrate 10 years of the RDA0 | Add new comment
RDA CURE-FAIR WG Webinar 22 Sept. 21:00 UTC
Hello RDA WG and IG members - We are writing to invite you to attend and help promote the upcoming CURE-FAIR WG webinar 'Introducing 10 Things for Curating Reproducible and FAIR Research" hosted by the RDA-US on 22 September 2022 at 21:00. This webinar will showcase the guidelines designed for curators and researchers interested in publishing and archiving reproducible research outputs. The webinar will be presented in English with live translation to French and Spanish.0 | Add new comment
RDA WG-HRPOs: Invitation for adopting the guidelines and recommendations for implementing FAIR policy in health research
Dear RDA WG-HRPOs members, We would like to bring your attention to the RDA working group (more details below) and invite you to consider adopting the guidelines and recommendations for implementing FAIR policy in health research. The new Research Data Alliance Working Group on Raising FAIRness in health data and health research performing organisations (HRPOs)0 | Add new comment
Call for RDM experts in health research
Dear Raising FAIRness in health data and HRPOs WG, I am currently working in Riga Stradins University, which is predominantly a medical university, also performing health research. At the moment, we are developing our RDM system, including new Dataverse repository, implementing DMPs for research projects in Argos, guidelines etc.0 | Add new comment
RDA Plenary 19 [Part of IDW 2022]: Invitation to attend the session "Finalising guidelines for FAIR adoption in health research performing organisations"
Dear group members, We would like to encourage you to join the session of the WG on Raising FAIRness in health data and health research performing organisations , which we are organising at the RDA 19th Virtual Plenary Meeting, part of the International Data Week . This meeting will primarily demonstrate the work that has been undertaken and showcase the outputs that have been generated in the form of a set of clear guidelines for the FAIR implementation in health1 | Add new comment
Canceled: RDA HRPO WG Monthly meeting
Dear Members and Attendees, We would like to cancel the meeting this month and hope to see most of you at the RDA Plenary, breakout session 4 on Wednesday, 22 June 2022 (https://www.rd-alliance.org/rdas-19th-plenary-programme-0) Kind regards, Venkat, Celia, Kristan & Anu The Group Co-Chairs0 | Add new comment
RDA Plenary 19 Draft Programme Now Available
Dear Group Chairs, The RDA 19th Plenary draft programme is now available: https://www.rd-alliance.org/rdas-19th-plenary-programme-0. Please note that the Plenary programme is a part of the International Data Week programme that can be accessed at https://www.rd-alliance.org/international-data-week-2022-programme.0 | Add new comment
Canceled: RDA HRPO WG Monthly meeting
Dear Members, We are canceling the meeting for this month. We will communicate updates to the WG deliverables via emails and hope to meet next month. Kind regards, Venkat, Celia, Kristan & Anu The Group Co-Chairs0 | Add new comment