Francis P. Crawley

Francis P. Crawley is a philosopher specialized in research ethics and methodology, integrity, and data/AI ethics & law. He is the Executive Director of the Good Clinical Practice Alliance – Europe (GCPA) and the Strategic Initiative for Developing Capacity in Ethical Review (SIDCER) located in Leuven, Belgium. He has been a member of the Research Data Alliance’s (RDA) Legal and Ethics Working Group and the Community Participation Working Group. He recently launched and chairs the Artificial Intelligence and Data Visitation Working Group (RDA AIDV-WG). He is also a member of the Research Data Publishing Ethics Working Group with FORCE11 & The Committee on Publication Ethics (COPE), the Pistoia Alliance, Regulatory and Ethics Work Stream of the Global Alliance for Genomics & Health (GA4GH-REWS), and the Data Stewardship Working Group of the Virus Outbreak Data Network (VODAN) GO-FAIR. He brings substantial experience (UNAIDS, WHO, WMA, UNESCO, and others, including local organizations and industry) in developing health-related research projects, collaborative engagements, regulatory and policy outreach, and education and training in Europe, Africa, Asia, the Americas, and Eastern Europe & Central Asia. He has played a leading role in the development of international and national guidelines, capacity-building, empowerment, and education programmes for health research, including GCP, ethics review systems, and data privacy & management (a GDPR DPO), with expertise in the ethics of ML & AI. Recently he launched the Ukraine Clinical Research Support Initiative (UCRSI) that includes a workstream on clinical research data in conflict situations. 

FOCUS
The RDA / EOSC Future Ambassador for Ethics & Law has the goal of advancing the understanding of the European Open Science Cloud Future Project with scientists and research institutions, as well as with patients, communities, health advocates, and the public, providing important emphasis on those instances otherwise underrepresented in initiatives for Open Science. The ambassadorship includes outreach to institutions and people. This includes public and private institutions that are engaged with processing research data and eventually finding repositories for that data, publishing the data and the finding from the data, and/or sharing or re-using data.

Country
Belgium
 

Publications, talks and other outputs

• 2023-02-16 EU-U.S. TTC Joint Roadmap for Trustworthy AI and Risk Management
• 2023-02-08 3rd United Nations Open Science Conference, “Accelerating the Sustainable Development Goals, Democratizing the Record of Science”
• 2023-01-31 Stepping up Open Science with OpenAIRE services; what’s in it for Universities, Research Performing Organizations & Institutions
• 2023-01-25 Open access scholarly publishing association (OASPA)/Jisc publishing workflows
• 2022-12-15 PRIM&R Annual Conference, USA, Session E15: ‘The IRB Role & Practical Tools for IRB Review of Research Proposals Involving Artificial Intelligence (AI)’
• 2022-11-28 European Forum for Good Clinical Practice (EFGCP), eConsent Working Group Member
• 2022-11-17 Cancer Research and Cancer Care During the War in Ukraine: Addressing the Challenges of Conflict and Displacement; Organised Under the Auspices of London Global Cancer Week 2022; Organised by the Good Clinical Practice Alliance (GCPA)
• 2022-11-16 Session Organiser and Co-chair: ‘Developing an Ethics Framework for Artificial Intelligence in Support of Collaboration and Resource Sharing for Open Science’
• 2022-11-16 Session: ‘Data policy for Open Science in crisis situations’ 16 November 2022
• 2022-11-04 Presentation: ‘AI and Data Visitation: Addressing challenges in data transfers in clinical research within the framework of Open Science’ at Festival of Biologics, Basel, Switzerland, 2-4 November 2022
• 2022-10-29 ICG 17: The Annual Meeting of the International Conference of Genomics BGI Dialogues on Science, Philosophy, and Society; Bioethics: BGI Dialogues on Science, Philosophy, and Society: ‘The Pathway to Open Science’; Re-visiting CRISPR in the Framework of Open Science: Integrity, Curiosity, and Generosity in the Framework of Truth and the SDGs; Presentation on ‘Research Integrity and the Frankenstein Challenge to Open Science’
• 2022-10-28 The RDA / EOSC Future Domain Ambassadors: FAIR engagement across the RDA and EOSC; 11th Edition of the International Colloquium of Social Sciences and Communication (ACUM 2022) and the National RSS Conference
• 2022-10-24 WorldFAIR: Global cooperation on FAIR data policy and practice; Workshop: The need for data policy in times of crisis
• 2022-10-14 Evolution Summit, Fairmont Le Montreux Palace, Switzerland; Co-chair of the conference and presenter; Presentation on ‘Clinical Research, Situationally Adaptive Clinical Trials, and Open Science: Learning from the Ukraine Crisis’
• 2022-10-01 Coauthored, Joint FORCE11 & COPE Research Data Publishing Ethics Working Group Recommendations
  
• 2022-09-16 Kurihara, Chieko, et al. ‘The continuation of clinical trials in times of war: A need to develop ethics and situationally adaptive clinical research guidelines’. Section: Regulatory Science: Frontiers in Medicine. 16 September 2022
• 2022-09-01 Unicamp Panel Discussion: ‘Ethics in the use of data’, 1 September 2022; Presentation: Personal Data Masking the Public Good in the GDPR: An Excursion into Personal Privacy and Private Goods
• 2022-08-30 Teaching Presentation: ‘Establishing Open Science Policies for Data Generation and Sharing in Disruptive Situations’ at the 2022 International Training Workshop on Open Science and SDGs: Session on Overview of Open Science and SDGs, virtual, Beijing, China 29 August to 9 September 2022
  
• 2022-08-09 Kerpel-Fronius, Sandor, et al. ‘The ethical responsibility to continue investigational treatments of research participants in situations of armed conflicts, economic sanctions or natural catastrophes’. Section: Regulatory Science: Frontiers in Medicines. 9 August 2022.
• 2022-07-19 ‘Reconsidering the Nuremburg Code, the Declaration of Helsinki, and CIOMS Guidelines in the context of the war in Ukraine’; Bioethics Education International Summer School 2022; New York, New York, USA; 19 July 2022
• 2022-06-30 Publication: David R. Curry, David R., Francis P. Crawley, Barbara E. Bierer. ‘Global Forum for Research Ethics & Integrity (GFREI): A Replicable Model of Open, Global Collaboration Among Researchers, Scientists, Ethicists, and Academics as Individuals and Global Citizens’ Acta Bioethica 2022; 28 (1): 157-158
• 2022-06-02 Buergi, B.R., Arawi, T., Asif, F. et al. Calling for Unity, Solidarity, Continuity, and Access-Oriented Action in Times of War. Pharm Med 36, 147–151 (2022).
• 2022-05-30 Launch of the RDA Artificial Intelligence and Data Visitation Working Group (AIDV-WG), followed by monthly meetings

See also 

Francis's profile on the EOSC Future grants platform

Francis's RDA profile on the RDA website

Background information: EOSC Future open call programme

Back to the Domain Ambassador Programme